You’re not alone in coping with congenital athymia. You may find relief and support in connecting with others.Learn more
At the time a child is diagnosed, your immunologist will work with you and the rest of the medical team to develop a care plan.
This will likely include isolation and the use of some medications to help prevent infections. It will also include information about how any underlying conditions are to be treated.
Learn more about caring for a child with congenital athymia.
There are many resources available to help you take care of yourself and your family. You should always talk with your healthcare provider if you have any questions. The following organizations are independent of Enzyvant and may also be helpful:
This nonprofit organization helps families and caregivers affected by immunodeficiency disorders find support, education, awareness, advocacy, and care.
Here you can find valuable information and insights related to immunodeficiency disorders, including the Patient and Family Handbook for Primary Immunodeficiency Diseases.
This organization raises awareness of 22q11.2 deletion syndrome (DiGeorge syndrome) and offers support and accurate information to families and caregivers affected by the disorder.
This organization pursues positive change and aims to connect, empower, and inspire the rare disease community.
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